Jaceys JHD Journey~ My Story

The Park, Ice Cream, and Opko(Shopko) and of course the exciting part for Lilli, ammas house!! Hoover loves the squidward house so he’s got a spongebob theme, and all our kids from today

seizing for hours on the edge of sleep and awake during them and of course noone sees because im supposed to be sleeping til 5 and now i’ll prbly get sick from the lack of sleep and extra pain for the seizing and probably more fucking seizing just because i can’t yell doesn’t mean i should have to go through this hell and you can’t call 911 for these because you get 2 meds and then ride it out bc it doesn’t kill you that fast like the others so its even fucking worse im soo sickk of thisss!!!!

very glad to have god such an amazing team to track me down and bring me to safety thank you

i’m apparently in a lot of articles news stuff now, and the l’anse sentinel soon too, i want everyone to remember that i’m not just a disease i’m a person trying to get through this no matter how many symptoms or how i may seem just someone sick doing something ridiculous, i just needed a  break and the lake has always calmed me i’m pretty sure anyone could make the same mistake.. i’m lucky i held on for so long with all my symptoms though that was a blessing from God for sure. if you don’t know me don’t judge too much into it, if you do i still wouldn’t want you to lol

juvenile huntington’s disease is your own personal hell and traps you into yourself taking everything away, i’m not that just suffering of that waiting for my time for God to take me. Until then i’m avoiding cliffs!!

heres one article news: Upper Michigan Source

 

went to relax at the lake, tried to get down to the lake thought it was a straight shot.. yeah it wasn’t terrible too far down for mom to find me and if i let go it was a straight death but i held on good to the only branches that really stayed and called 911 and a bunch of cops came and lifted me up using an orange weird rope but ouch i am not doing that again i am home and on solid ground thank you God for the 911 system to track my location!! mom almost passed out it was a straight path down i thought it i did it was pretty though before i got stuck, i took a picture before i tried to go down see God stayed by me when i thought i was gonna fall he stayed and said i wasn’t going to fall i’m very blessed to have such a great rescue team!!

 

 

 

 

How do you see.. When you see me and others like me, do you pass someone who’s sick or do you think of a druggy, is it a curiosity or just something to do, are you going to ask or just ignore it.. Have you ever thought how many people do ignore it? Are you scared or just stressed or confused or just letting everyone lead you.. Do you talk to them who do you see, when they talk to you how do you look at it.. When you see this are you going to pass it, read part of it, read all of it, or embrace it.. I’m really curious.. How do you see.. A friend.. A community member.. A stress.. A sad case.. Not your issue.. None of your buisness.. Too much to handle..a playing card.. Taking advantage.. Running away.. Helping.. Getting involved.. Do you care.. How committed are you, are you leaving when it’s too hard because of how you see. Are who you see a moment in your life but a wish in theirs.. Do you see responsibility.. Do you see someone in pain,how can you tell.. Did you ask.. Did you see.. Did you look.. How painful it is, how important your view is, how you’re reacting, how real you are as not just one person but maybe just the person instead.. Not a million, just you who stopped to notice, to care, to want to help. Do you see importance or small causes.. Is there rebellion.. Did you choose to see this.. Were you born into it or some assignment or maybe family even friends.. Are you staying or leaving.. What do you see or do you deny what you see.. Do you care?

Juvenile Huntington’s Disease can be hidden in different ways, it exists its real, there’s so many suffering, so many angels.. Did you stay with them, are you with them now.. Did you ask.. Do you know how important and amazing they are.. Are you running or are you gone.. Did you leave part way through or just didn’t care what you’re decisions are. These kids can’t go play they aren’t able to fully talk to you and if they can will you be there.. When they walk odd or drop something.. Are they down the street, online, school, tv, neighbor, relative, in rumors. Do you know how bad the pain, machines, tests, hospitals, er runs, fear anger guilt acceptance frusteration, did you do something, will you? Who’s with them or is just anyone being there a way for you to leave, how is the family, how is the child looking.. What will your roll make happen. Will it hurt or help will you run or stay, will you help or ignore, stand up educate or be one in the millions that don’t care. Will you help them get what they dropped, send them a card,will you  tell people why they’re doing something will you stand up to them, care about them for who they are. Look in your eyes what do you do with what you see and how do you see it? They’re just like you if you see them and not just everything. 

Visiting Lilli and Karisa learning to play hopscotch while Mom and Karisa worked on the porch, Mom showed Lilli her giraffe that sticks out her tounge and she loved it

 

Went to the drive in and got ice cream Daddy’s favorite place to eat and get lots of root beer like Mom got for Erica and went to the park and played with a Eurodane Graham apparently he loves the sand but is just learning about water but he sure slobbers a lot from it so far it’s just a giant water bowl he’s growing fast he’s..  European Great Dane tends to weight in at 180lbs and up. Usually topping the scales at 220–240lbs. With that weight comes a much blockier body, heavier head…showing a lot of the Mastiff that was used to breed this gentle giant….they are just BIGGER and he loves to play and talk and talk and talk he’s a full out puppy still!! Graham is still only months old.

The simpsons on my tv got unlocked and now i can watch all the seasons i should make it a goal to watch them all i think i’m pretty far already though starting at the bottom

April 29th 2010 my Daddy passed away, 2 months after my little sister Karli it doesn’t feel like this long but it seems my mind and body recognize it even if I don’t.. Yous have parts of me that I’m not getting back until i see yous again yous gave sooo much to the world and still do I’m so proud and miss yous and love yous soo much 

surviving, sickness and seizures and everything else on the roller but stepping where God and Jesus lead almost like stepping into empty air cant do most so watch the fish full body is just so ridiculous in varius new and old forms mostly bed stuck head is no good lots too going insane not on here bc of life sick is sick is sick frusterating sad scary alive taking it all in step  by step issue by issue i couldn’t word it its just.. being somewhere then where i was in jhd my Mom blessedly helping me posting the kids still i’d be soo lost without her esp since she’s my 24/7 carer and are my sleep patterns perfect for her lmao i’m sure she’s taking empty faithful steps too i love watching my fishy wonderland the red queen passed.. white queen white rabbit mad hatter alice cheshire cat are all okay also ‘loving my sleep schedule’ and hoover is doing great awhile bfre he can go in wonderland too

its comforting knowing god and jesus are in life and death always there is very much comforting