This is your life 

There’s been alot of seizures and pain knots from the way I position and being tired but can’t sleep fully leads to more seizures also when you’re body is waking up, the stomach aches from jhd are so specific you know it’s the same, I spent a lot of time sleeping in recliners couches floors so hard to have to use the bed early on in this disease I’ve learned to lay flat straight arms at your side not moveing even if you feel you need to react to the pain don’t you’ll regret it later I know it’s close to the high pain scale but remember you’d rather go forward then backward because of everything you’ve handled it’s not okay then it’s not the end and it’s the small moments that make you glad you were alive for 

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