My Life

feels like my childhood was surviving my dad, locking ourselves in rooms from him being so scary, listening to fighting and arguing scared he’d hurt mom, unable to leave because of the situation, i know he was truly my daddy inside he wasn’t like this inside him, being scared of losing karli and daddy, worrying, saying goodbye to karli over and over different times, waiting up for her to come home from the er, and then getting sick, dealing with that, erica getting sick, daddy going into a nursing home, losing karli and daddy, trying to figure out how to live life without them, trying not to rely on people so much, going to events for support and then everything goes back when you go home, trying to attack the symptoms and understand them enough to control them at all, trying to find a good doctor, get sicker and sicker and sicker feeling all of it sooo sickk all the time, watching erica get sick, watching my mom go from mom to caregiver to maid to 24/7 carer, things i never thought i’d have happen, but through it all being able to help jhdkids still!! This disease controls my life. But GOD Controls Even More Then This Disease!! Alleluia


and this is the non descriptive version

karli and mom (43)

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