it seems like kids with Juvenile Huntington’s Disease are more then that. They seem more like family. When i see them happy, excited, amazing memories of them i love them all when they cry, hospitals, progression, death, i cry and grieve, i worry about what happened to me happening to them and that it won’t be a lot of different things. I understand it and am going through it awhile and it never gets easier jhd either makes it different or worse. it says in the bible to love everyone as if they were you’re Family. I love posting updates about them adding to their jhdkids.com page. The best we can do is pray they are as best as they can be pain free for even a second. Special moments to remember. our journey’s have let us meet and some will probably be until Heaven. I love every second any second i spent with them even when i was able to video them. So many are Angels now.
Jaceys JHD Journey~ My Story 