Tag: brave

Thank you to everyone brave enough to share their stories. To show people that these exist and that they can’t disagree to the proof. Juvenile Huntington’s Disease Exists. That’s why there’s stories and videos and research showing these kids need help because they are kids. They have different brain science and symptoms their own personal hells never the same one as the others. That’s why i did it. When I got my make-a-wish i made The Real HD. To show, it exists, in kids and adults. I got so upset from a post someone had put about information i don’t remember all about but i wanted them to see the truth. To know it’s real. So Thank You For Everyone who posts about it, shows videos about it, talks about it, says JHD exists and so does HD but not the same thing. 2 types of one disease, child onset and adult onset. No CAGs Needed for all of this. They’re scientifically being unproven with stories and facts that i’m not up to date with but my mom is and jhdkids have these facts just being alive and showing it the same way. People need to know about it. JHDKIDS is All For The Kids that we can make it as much as possible. I care about every single one even if they’re not in jhdkids because even though i have a different onset like how i can type but others can’t, sometimes im stuck in a corner on the couch only headphones, oneday i get a good day and mom pulls out the small hairwash thing to clean my hair. I keep losing everything, i’m a soul inside a body that’s killing me painfully and i wish it would just stop hurting. I don’t care about getting any attention than what is needed for these kids and families, they’re not alone even if they have trouble finding that out. I spent my years the way i wanted to by showing people how real this is.. and now i can hand it down to my Mom which is mostly often. I’m very proud of everyone who decides to tell the world this is happening so help, pray, fix it.. because these are my children, or sister, or brother, aunt, nephew, niece, grandson, grandaughters.. jhdkids some of the bravest children you will ever get to know and love having known. Be The Change You Wish To See In The World.