How was I diagnosed at 13 with jhd slowely progressed through where I thought I should die and still hurt like heck 24/7 but my symptoms are so mixed from seizures dystonia to confusion and panic disorder jhd and hd how can i live this long and have both i wish I would’ve just died with Karli, who passed away at 13 years old at home my Dad from hd in a nursing home 3 months after her. This study was made from us, Karli, Me, Erica, and Daddy, Same CAG as Daddy 47 but Karli’s was 99. Yet im 30 something years old confused as heck, went through wheelchair stroller foot braces make a wish, watching my family die, seizures dystonia very badly choking issues spasms digestion issues at home on the couch
Jaceys JHD Journey~ My Story 