There’s so many world i’ve lived in and mourning myself as what i could do heres More moments I miss being able to handle but love seeing I miss just having my bedroom back ridiculous disease i’ve updated a few, people don’t get, heck i don’t get how i’m still alive and suffering juvenile huntington’s disease.. sprained ankles seizures dystonia through my childhood and through a few years more i honestly wish i was dead because of how painful it is but my point is i’m not yet and i reaally need to stickk with God’s Will no matter how many people don’t believe me it doesn’t matter because noone likes everybody, and this is God’s World no matter who says otherwise, i have a little sister who passed away from jhd Princess Karli Belle was only 13, My Dad Karl had HD and passed away 2 months later, I was diagnosed with jhd at 13 years old, and my Older Sister Erica a bit after me with jhd also. My oldest Sister Karisa has a different Father so she’s thank God not sick. Even though everyone’s different with this disease they all deserve to be helped and loved and shown for how amazing they are, be remembered and missed, showing how many kids there really are suffering and everyone deserves it no matter the age the progression type, some have bad chorea, some are completely stiff, it’s all different, even CAGs don’t determine the pathways on it all i’ve been putting together more videos on tiktok for the jhdkids too showing the world they’re here they need their own help and research and understanding if you can’t see the links all the way just click on it
this one below is mine memories i miss so much and some that bring me joy still like my rescued Yorkie Leo, Tigger is more like it he can jump to moms head
Jaceys JHD Journey~ My Story 